Paula Daiana
patient
Paula Daiana is one of the children diagnosed with the rare genetic disorder Spoan in Serrinha dos Pintos. Her condition has brought attention to the genetic challenges faced by families in the region and has been a significant aspect of her mother's advocacy for better understanding and resources.
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Recent Mentions
Venezuela:
Paula Daiana, known as Paulinha, is one of the diagnosed patients with Spoan.
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Silvana Santos
Marcos Queiroz
Elenara Queiroz
Jose Moura Sobrinho
Manoel Firmino
Rejane
Claudia Galvao
Larissa Queiroz
El Nacional: La científica que descubrió una enfermedad rara en una zona remota donde “casi todos son primos”