Ksyusha Moiseenko
Ksyusha Moiseenko is a three-year-old girl from Mogilev, Belarus, diagnosed with spinal muscular atrophy (SMA) type II, a rare genetic condition that progressively weakens muscles. After her mother was unable to care for her, Ksyusha was placed in a specialized children's home. Recently, a fundraising campaign raised $1.8 million for a life-saving gene therapy, Zolgensma, but her medical condition has complicated her eligibility for the treatment. Despite these challenges, her health has shown improvement due to rehabilitation efforts.
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Belarus:
Ksyusha Moiseenko is a three-year-old girl from Mogilev diagnosed with spinal muscular atrophy type 2.
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