Fiderca Lora
Fiderca Lora is the president of Fundación Cúrame and a mother of three daughters affected by spinal muscular atrophy, including two who are currently living with the condition and one who passed away due to SMA type 1. Her advocacy focuses on the challenges families face in accessing treatment and the need for early diagnosis and intervention.
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Dominican Republic:
Fiderca is the president of the Cúrame Foundation and mother of three daughters affected by spinal muscular atrophy.
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