Craig Coady

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Craig Coady is a grieving father who lost his son Rory to Friedreich’s ataxia, a rare genetic disorder that affects the nervous system. He has been vocal about the impact of the recent decision by the HSE Drugs Group not to fund a potentially beneficial drug, omaveloxolone, which could help his surviving son, Paudie, who also suffers from the same condition. Coady has expressed his devastation over the decision and hopes for intervention from government officials to secure treatment for his son.